Monday, January 17, 2011

Please worry about me

The phone message from Dad is, "I'm in terrible shape. Please worry about me." I do worry. I have a black belt in worry.

Trouble is, I already spent two hours with Dad and another frustrating hour with his Medicare D prescription plan provider's phone menu today. I'm practicing balance, limits, and self-preservation now that Dad is just a few blocks down the street instead of 650 miles away.

Where can I get a WWYDIYWBIN wristband for Dad? Where can I get a WWIDIHWBIN bracelet for myself?

What would I do if Howie was back in Nebraska?

Dad, what would you do if you were back there?

How on earth do elderly people manage to find their way through the darn insurance phone menus? HOEDEPMTFTWTTDIPM would require a wristband as big as a hula hoop!

After a dismal noon mealtime with Dad Sunday, I needed a 1/3 lb. bacon cheeseburger with fries ASAP. Caregiving is going to make me a blimp in time for the Super Bowl! Got calls from a son and my sister while sitting in the booth. Knowing I have their emotional support is essential.

Still sitting and slurping my Barq's, I read Karen M. Thomas' essay in the Dallas Morning News instead of skipping to the Sudoku puzzle. This poignant feature had tears streaming down my cheeks right there in the burger joint. 

© 2011 Nancy L. Ruder

Thursday, July 08, 2010

Phone outside the box

This wouldn't be a major telecommunication breakthrough for most people, but Dad called me from out in the corridor tonight. Yes, he is out in the hall, and amazed the miracle of his cordless phone extends that far from its mothership.

Dad has lost the social filters that keep him from blurting out whatever he is thinking. He uses his nightly news hour phone calls as a megaphone for insulting his roommate, the roommate's visitors, and the care facility staff. I'm embarrassed 650 miles away. I'm often insult fodder myself. Tonight the dynamic was a bit better.

The time just before and after supper is difficult for elderly people. Dad usually feels compelled to call me during this time, and I am most likely to be able to talk with him then. Dad is irritable, anxious, and truly obnoxious. Unfortunately, people converge in his room at this time to watch "Wheel of Fortune" and coax his Alzheimer's roommate to eat supper. This is a powder keg situation.

Phoning from outside his room is a good step for Dad, even if he misses the tv news and weather report. Thanks to the trained staff for helping other residents and families understand the characteristics of Dad's dementia. Thanks to so many for kindness and patience.

Out in the hallway, Dad won't insult his roommate's family. He will still announce his uncanny estimates for the weight of every staff member who walks down the hall. "Hush, Dad," I say. "You don't need to say that out loud!" You won't win a giant teddy bear for guessing weight and fortune.

© 2010 Nancy L. Ruder

Wednesday, June 16, 2010

A flood of engagement and clarity

News flash! Dad is totally on top of the current flooding situation in both the Elkhorn River area of Nebraska, and the region north of Oklahoma City including Edmond and Guthrie. Dad can reel off names of all the towns along Highway 81 near Norfolk, the number of bridges out, and the sandbagging operations. When I fact-check his reports, he has it nailed.

This same dear old fellow couldn't separate news of Israel's Gaza blockade from the depressing reports about BP's disaster in the Gulf of Mexico when I was visiting him. Most days he doesn't bother to concentrate on current events at all. His big challenge is squinting at the digital clock to decide when to start wheeling down to the dining room for meals.

Dad's not just engaged in the news. He has a fresh perspective and sense of gratitude to be "high and dry," and living in a facility that cares for and about him.

I'm wondering just what part of the disasters hook Dad's thoughts and drag them out of the fog. Is it the placenames recalling childhood homes and more recent visits? Is it the Dustbowl Era childhood memories of Nebraska droughts and floods? Is it the tactile experience of his own distant childhood efforts to build little dams on Willow Creek? Or is it a resurfacing of the empathy that often made him contribute to Red Cross efforts during international catastrophes?

I wish I could share with Dad the Google Maps satellite views and YouTube videos, and record his memories of the topography and history of the region. As it is, I'm just enjoying this window of clarity with Dad. I wouldn't wish flooding on any person, home, or community, but I'm thankful for this side effect.

© 2010 Nancy L. Ruder

Friday, May 21, 2010

Life imitating Tom Robbins




Good grief! Dad is convinced that he's been invited to South America. He says his night aides won't let him leave. They want him to go back to sleep.

All this scenario needs is a parrot. It's been years since I read about Switters in his wheelchair. Dad is indeed a fierce invalid, and a recalcitrant dreamer.

I'm worn out trying to explain the use of a phone to Dad. He's lost the list of memory-dial numbers.

© 2010 Nancy L. Ruder

Monday, April 12, 2010

The Wave

Thank heaven for major league baseball on tv! Alleluia, and then some. The romaine growing on my patio is doing The Wave (in slow motion). I am doing The Wave with inflated beach balls. If the magic invisible stadium organist played the macarena, I would do that, too. If Kate Smith bumped me out of my seat in the seventh inning stretch and started belting, "God Bless America," I would buy her a hot dog with relish. And one for my dad with kraut. And one for me with extra mustard. Life is good.

Dad is charged up about the exciting Cubs game today. He knows all that went on, even if he can't figure out how to turn down the volume when I call.

For several months Dad's only interest has been cracker jacks. The staff advised me that eating caramel corn was considered a fine motor skill work-out at his age. Now we've got peanuts and pine tar. Yippee. So let's root, root, root for the old folks' home team. If they don't win it's a shame.

© 2010 Nancy L. Ruder

Friday, March 26, 2010

Is there blood on the carpet?

Do you really need to call me at work? When my sons were adolescents and I was a working single mom we developed a useful guideline. I expected the boys to settle disputes and handle problems themselves up to the code level of blood on the carpet.

Tonight Dad has his undies in a bunch for no reason. Having left one phone message on my cell, he's calling and calling my home and cell phones so I can't even get a return call through to him. When I finally catch him he says he was about ready to call my brother to have him call me. What's the emergency? What's the problem? Is there blood on the carpet?!

Dad was just calling to tell me about his supper. This is our daily call. Sometimes it is the first of several evening calls. I remind him of the days when his grandsons had the blood-on-the-carpet rule. He remembers and laughs. For a second we are in the present remembering the past together in a relaxed way.

I love you. I'll call you tomorrow when I get home from work. Don't call me unless there's blood on the rug.

© 2010 Nancy L. Ruder

Friday, March 05, 2010

Downhill combined

Dad has no patience for the Winter Olympics tv coverage. He was glad to be freed from figure skating competitions when Mom died five years ago. Now he can't tolerate any of the downhill events. Instead he wants to be scooting his wheelchair out the door to keep tabs on the hallway happenings of the skilled care floor.

Dad is assisted living's answer to Dick Buttons and Scotty Hamilton. He is all about scoring, judging, and commentating on the skilled care facility medal events. The nurses, aides, food-servers, bathers, therapists, activity coordinators, and housekeepers are all being judged on a his strict Eastern European Cold War scale.


It took three phone calls Thursday evening for Dad to fully judge and report the carpet cleaning event. One phone call was to inform me that the one-man sawed-off bobsled was actually a National Sanitation Service (NSS) Pony 20 SCA carpet extractor for cleaning the hallway.

© 2010 Nancy L. Ruder

Thursday, March 04, 2010

A Foggy Day in Lifesize Town



It had me low.
It had me down.
The "17-day charge capacity" time and energy concept on his new Norelco rechargeable electric razor has Dad in a fog. He needs a lot of attention to talk him through. He needs more help to ponder the best way to break the safety seal on a tube of Avon hand lotion. Small projects, big worries.

Many recording artists have sung George and Ira's "A Foggy Day in London Town." I'm hearing Julie London singing from a clearance bin LP Dad brought home for our hi-fi in the mid-Sixties.



My little art students are beginning a trace-around project. I haven't tackled one of these projects for a couple years because they are joyful, messy, logistical nightmares. On the upside, trace-arounds are popular and fun to display.

Wednesday the kids took turns lying down on a big roll of brown butcher paper in a pose. I traced around forty-five kids. Seeing the outline is exciting as each child loves to know just how big he/she really is.

I hope to post photos of the completed project in April. Until then, I have my own visual aid letting me see exactly how big and ground down my teeth are. My, what big teeth you have, Grandma!

But in foggy Lincoln town my dad is shaving...


© 2010 Nancy L. Ruder

Tuesday, February 23, 2010

How was your guilty day? Ask me about mine.

My students take a sideways glance toward me whenever they are doing something they shouldn't. Now I know how Mr. Salestrom felt patrolling East High when he was the principal of vice. As a former Cornhusker football hero, Mr. Salestrom had hallway cred. His cross-armed presence in the study hall was enough to make most mischievous deviants reconsider their plans.

My father phones me to chat whenever he thinks the aides might contact me. Dad would rather confess to a misdemeanor than be ratted on for a felony by the staff in his skilled care unit.

Cheezits! Howie got me again the moment I walked in the door after work. He was so pleased with himself because he had already had supper and his "afternoon purge". He had told the nurse aide offering to check his ear wax "at no charge" to "get the hell out" so he could have his dump. I said I was sure he was more polite, but he wasn't. Then he went into the litany of his meal menu, and said it was time to hang it up. I said, "Gosh, we can hang up, but I thought you would want to ask about my day."

"Oh. We could do that," Dad says.

I laughed, and proceeded to tell him about the girl barfing ALL OVER THE CLASSROOM, and me bravely leading the other children to the library for an impromptu storytime to prevent copycat chain-reaction vomiting. So, Dad, you don't really want to ask about my day today. But in the future it might be a nice gesture!

© 2010 Nancy L. Ruder

Monday, January 25, 2010

Eggs and eels

Life is short except when it is so long, and breakfast should be the best meal of the day. When I am old I will especially want exactly what I crave at breakfast. Don't mess with me!

We have just realized that Dad's allergy chart lists eggs, so he hasn't been served an egg--over easy, poached, or scrambled--since at least June. Somehow a very old list of allergies that may or may not cause eczema has limited Dad's breakfast choices. All this time I just thought he had developed a strange fondness for cream of wheat!

You are old, Father William, and you should have eggs cooked to your specifications! But no eel. Please do not balance your breakfast on your nose.

I'd forgotten that Father William is a creation of Lewis Carroll, and went searching for the old guy and his eel in Edward Lear's poetry.

"You are old," said the youth, "one would hardly suppose
That your eye was as steady as ever;
Yet you balanced an eel on the end of your nose
What made you so awfully clever?"

"I have answered three questions, and that is enough,"
Said his father. "Don't give yourself airs!
Do you think I can listen all day to such stuff?
Be off, or I'll kick you down stairs.

[Lewis Carroll (1832-1898) First publication date: 1855]

Peter Pan did not grow up. My dad is growing younger by the day. Christopher Robin had so many meals of sweetened condensed milk with Pooh. I plan to read the novel Alice I Have Been, by Melanie Benjamin, maybe even in time for the author's talk at the DMA Late Night on March 19th.

Arts & Letters Live: Melanie Benjamin
Date Friday March 19, 2010
Time 7:00 PM - 8:30 PM



© 2009 Nancy L. Ruder

Saturday, January 23, 2010

Dads in time-out/Dads in Dubai

My dad is in time-out tonight. The aides have suggested he spend cool-down time in the skilled care lounge instead of going back to his room. He needs an attitude adjustment. Like many of my students, Dad will probably forget why he is sitting aside.

The similarities between my preschool students and my father increase. So do similarities in management methods. Allegedly, another old fart tried to cut in line ahead of Dad at suppertime. Dad cussed him out, big time.

When the wheelchair gangs all travel toward the dining room it's like State Fair bumper cars. Then the frustration, impatience, limited empathy and stunted communication abilties kick in. Next thing you know, you've got a rumble between the Jets and the Sharks.

We said, "O.K., no rumpus,
No tricks."
But just in case they jump us,
We're ready to mix
Tonight.


My walking buddy has flown to Florida to meet her dad's flight. He's headed home from Dubai after being taken off his cruise ship with pneumonia. He spent a week in a Dubai cardiac ICU. She doesn't know if she will have to take him straight to the nearest cardiac hospital from the airport. For her

Today the minutes seem like hours.
The hours go so slowly,
And still the sky is light.
Oh moon, grow bright,
And make this endless day endless night



© 2009 Nancy L. Ruder

Saturday, December 19, 2009

Penthouse of long-term care

The caregivers at Dad's assisted living facility are anxious to move him on up to the skilled care center. His outbursts in the dining room are disturbing to the other residents. They would like to move him from his private apartment into a small double-occupancy room, but with more staff available to assist him.

Dad's already on the east side of town and he's mighty fond of pie. Still, it doesn't seem like an improvement in his situation to be irritated by a roommate and pay twice as much each month!

Well we're movin on up, To the east side.
To a deluxe apartment in the sky.
Movin on up
To the east side.
We finally got a piece of the pie.

Dad was always pretty enlightened, tolerant, and polite, even before Norman Lear brought Archie Bunker and George Jefferson into our t.v. living rooms. One aspect of Dad's dementia is his use of labels we consider racist. This seems to be common characteristic of dementia in the elderly, but that doesn't make it less uncomfortable for anyone within hearing distance.

© 2009 Nancy L. Ruder

Tuesday, November 10, 2009

Chef Boyardee Had a Great Fall

The assisted living nurse called the school to reach me about 10:50. Dad had fallen in his apartment. His aide, found him on the floor with a lot of blood at about 9:30. The nurse was summoned immediately. She checked Dad's vitals and cranium. She cleaned the laceration above his left eye which she said was gaping at least 1/4". Dad was sent to the ER for sutures or skin glue. Dad didn't know when or how he fell.


I went into the jam-packed teacher workroom to send my siblings a quick text message about this episode. When I turned around I bumped a shelf. A teensy glass jelly jar with a red checked lid fell off the shelf and shattered all over the workroom. By the time I swept that up, it was time to get ready for lunch. One child brought a Chef Boyardee Noodle-roni cup--the kind where you remove the red plastic cap, remove the metal pop-tab lid, replace the red plastic cap with vent holes, and nuke for 45 seconds.


Plumppf. Not the usual microwave explosion sound, but I went to look through the microwave door. Chef Boyardee had fallen over on his side and was shooting greasy red goo out the vent holes, spraying the microwave walls and down under the rotating glass tray. As I stared, the lid popped off, and this merry carousel started trailing noodle-roni like a parade of grubworms. Some people watch reality tv. I watch reality Boyardee.

I just called Dad and he was speaking clearly. He said he had no aches or pains, but I was keeping him up. He knew that he had nine stitches and will have a black eye. He said everyone took really good care of him.


I didn't ask any questions about what happened, as I didn't want to flip him into anger mode. We agreed that he would try not to have a repeat adventure tomorrow. I can only pray that Chef Boyardee will agree to the same.

© 2009 Nancy L. Ruder

Monday, November 02, 2009

Pink Floyd switches from Daylight Savings Time

Time waits for no man, and it is scary to consider Pink Floyd wearing Depends. Time is preoccupying Howie today. I called to ask him the name for workshop masonite with holes because I was having a brain meltdown. He knew "pegboard" immediately, and I hit my forehead and said, "Duh. Thanks."

Dad was fretting about finding the instructions for his Seiko watch to switch from daylight savings. Had I run into those instructions in the chest of drawers at the house? I told him they were probably in the top middle drawer of that chest of drawers which is actually right there in his Eastmont bedroom. He was too anxious to check that out to continue our conversation.

Time is too slow for those who wait, too swift for those who fear, too long for those who grieve, too short for those who rejoice, but for those who love, time is eternity.
Henry Van Dyke (1852-1933)

Ticking away the moments that make up the dull day. Fritter and waste the hours in an off hand way...

© 2009 Nancy L. Ruder

Sunday, November 01, 2009

Howard Carter discovers Mr. Coffee

Mr. Coffee bit the dust today. It's heating component just gave up after what the obituary writers would call a long battle with caffeine. The deterioration was almost imperceptible at first. I figured it had something to do with my hot flashes that the coffee never seemed piping.

I don't build personal relationships with small appliances, nor do I consider them a relic to be preserved. I rarely save their receipts or read their instructions. When they are done for, I throw them in the dumpster without a eulogy, and get a replacement at Walmart.

This was not the way I was raised, and that's okay! Cleaning out my parents' house we found four coffee makers packed in their original boxes with receipts and instructions. Taped on the boxes were notes that said, "broken". Why were my parents saving broken appliances?

Tut, tut. What would the ancient Egyptians do with boxed broken Mr. Coffees? Would they put one at each corner of the sarcophagus along with a shabti servant statue to brew the coffee for waking up in the afterlife? Maybe those tomb inscriptions covering the walls in horror vacui style contain the receipts and instructions for the tomb contents. Down at the bottom there's the legal fine print reminding the deceased that coffee is hot.

© 2009 Nancy L. Ruder

Friday, October 23, 2009

This has been a crazy week, but the first tests show my dad doesn't have bladder cancer. He definitely has some other problem, although he doesn't understand this. Next week he will have a renal ultrasound. In mid-November he'll have a cystoscopy. That seems to be a day surgery (with anesthesia) poking around in his bladder. His last anesthesia experience sent him into another galaxy for five days, so this is scary. Of course, he spends much of his time in an alternate galaxy now. Please send good vibes and white light!


In my limited experience, having a doctor jam a scope up my deviated septum to view my sinuses is grounds for murder. I'm sure Dad will want to yell, "STEP AWAY FROM THE BLADDER, AND NOBODY GETS HURT."

A couple years ago Dad fell and hit his head. Having a brain scan, lying immobile in the tube with beeping sounds and light flashes gave Dad a vivid, terrible flashback to foxhole experiences in World War II.

I hope he has a little bit of Clint Eastwood in him to get him through that day.



© 2009 Nancy L. Ruder

Monday, October 05, 2009

Screenplay of the intermediate place

Not for the first time, I got off the phone with my father and pushed the VHS cassette of "Amadeus" into the VCR. I'm writing another scene in my imaginary screenplay, and F. Murray Abraham is playing the lead role.

Dad fell again today, but wasn't injured. He "screamed bloody murder for a long time, waking people up but getting no help". Eventually he pushed his call button. Once the aide arrived, the nurse had to be called before Dad could be lifted off the floor. Dad seems to have read the riot act to the poor aide about the sorry excuse for an "intermediate place" he was in. For Dad, assisted living probably feels like an intermediate place, a sort of limbo. I can only begin to imagine Dad's internal discussions about his current abilities and ultimate mortality.

The aide took Dad's temp, blood pressure, and pulse. Dad ranted because his socks weren't even a real pair. One sock was a Gold Toe and the other wasn't.

I started to say that the aides can't move him when he falls so they don't aggravate a break. Dad started swearing at me, that yes he understands this. Eventually he told me he was embarrassed now about his reaction and behavior. He is glad they were taking care of him, but it was pretty exasperating at the time.

I'm in the doghouse. I contacted the church to change Dad's mailing address for the pledge statements. Because of that, I "sicced" the visitation minister on him. The minister visited Dad today. They seem to have conversed about postage rates. I pray it was not like the priest's visits to Salieri in the mad house.

© 2009 Nancy L. Ruder

Sunday, September 06, 2009

Painful memories

I just finished shredding all the Medicare and supplemental insurance documents from Mom's illness in 2004 and 2005. I couldn't bear seeing them sit atop the desk in Lincoln, so I brought the stack back to Texas earlier this year. There's really no reason to keep them, so now they are gone.

The shredding reminded me of my intense frustration with the medical profession during Mom's decline. I'm near tears realizing all the invasive procedures she had to endure.

I don't return to this blog very often, as I remember it being about hospitals, doctors, tests, anger, and denial. It's interesting to see that I didn't apply any of those subjects as labels.

I'm still my dad's anchor, and the job hasn't gotten easier. Now being the AnchorWoman includes financial duties and being Dad's advocate in his assisted living facility. We are lucky. He is in a safe, familiar place with good food and caring staff. I am grateful for the evenings when Dad and I have a clear-headed conversation.

© 2009 Nancy L. Ruder

Thursday, July 09, 2009

Yesterday I took the train to CityPlace Station, and a bus to Preston & Beverly, then walked to work at the library. Left the Buick in Plano. I can't write comments on the Morning News blogs supporting mass transit if I don't ride it. Right?

So, when I walk out of the library at 5:40 the sky is a bit cloudy. By the time I'm walking through the shopping area it is windy and sprinkling. If I'd had any sense I would have waited for the bus outside the Tex-Mex restaurant, but I had time to kill, so I walked up McKinney to the next stop. It's raining, but it feels refreshing. At the stop a sprinkler system or storm sewer has gone haywire and is shooting gallons of water into the air in front of some trendy apartments AND fireworks are exploding in a tree. Lots of fireworks whizzing around, and big dogs running like crazy. So I walk on north up McKinney to where I think the next stop must be. And walking, and walking. My cell phone is ringing. It's Dad. I don't try to answer because the hail is marble size and I'm standing under an awning asking patio bar customers where the bus stop is. They look at me like I'm a crazy homeless bag lady, which I am starting to resemble. So I keep walking north figuring I have to find a bus stop or Mockingbird Station eventually. Once you are soaked to the skin it's not bad once the hail stops. Kind of like running through the sprinkler fully-clothed as a kid. Finally find a bus stop and the bus arrives. I leave a puddle on the bus.

At Mockingbird Station I call Dad back while I'm waiting for the train. He's gotten himself into a panic, calling and calling my sister and I at our various numbers and getting no one, no longer knowing who he is dialing. He says he's got a big problem. I figure he's fallen on the floor again and can't remember to push the call button. No, he got a bill and he wants to write a check, but he can't tell me who the bill is from or for how much. He's all into how the bill had been forwarded in the mail. And he's got to pay it by the 25th of something, but he's not sure what.

So I'm standing there dripping wet, talking loudly into my cell phone about Milk of Magnesia and Rx charges to my father who can't hear. Some people are moving away. Others are coming up to me to ask the time. A train goes by. I try to explain to Dad that this is not the best moment for me and I'll call him when I'm dry, but he's too anxious about the bill. Okay, he can write the check and stamp the envelope. Then I realize he will try to get out of his chair to go find the stamps in the drawer. Sigh. I've got most of the bills coming to me or automatically paid, but this one snuck through.

I stand up on the train all the way home, dripping, so I don't leave a wet seat for some unwary passenger.

© 2009 Nancy L. Ruder

Wednesday, May 20, 2009

Making a list and falling down twice

The weekend my column about fear of falling appeared in the East edition of the Dallas Morning News, my dad fell twice in three days. I spent last night compiling and annotating a list of my father's falls and other incidents over the past two years. Very sad to see the evidence of an average one fall per month, even though most injuries were minor.

The weekend ahead will be difficult as my siblings and I meet with Dad to convince him the time for assisted living has arrived. Dad is frail, depressed, cantankerous, and penny-pinching. He's also a sentimental fool and very funny storyteller. I'm calling up all my memories of that outstanding, ethical, hilarious, inspiring character to form my arguments for assisted living.

© 2009 Nancy L. Ruder